St. Augustine Parkinson’s Disease Support Group
The St. Augustine Parkinson’s Disease Support Group is committed to giving patients with Parkinson’s disease (PD) and their care partners access to researchers, health care practitioners, and each other.
The group meets monthly, hosting social gatherings and educational guest speakers. We also have special events to help fund raise and raise awareness to support our local Parkinson’s Community.
All of the meetings and events are free and open to the public. No registration is required. Communication about upcoming meetings and events occurs through our support group email list. Please contact the support group coordinator, Dr Melanie Lomaglio, via text, or voice message at (904) 501-8779. Alternatively, you can email her at email@example.com
Due to the covid-19 pandemic, all meetings are being hosted online through Zoom. Details and dates are below.
UPCOMING EVENTS 2020
Support Group Meeting: Friday Oct 23, 2020; 330pm-430pm at your home via zoom – Dr Ramon Rodriguez, MD, Movement Disorder Neurologist and Chief Medical Director of Neurology One (event sponsored by Acordia Therapeutics), will educate the group on the FDA approved inhaled levodopa powder.
Information: Experiencing a return of your Parkinson’s symptoms? You’re not alone, Inhaled levodopa (Inbrija) is delivered on-demand with an inhaler for “off” periods in people with PD who already take oral carbidopa-levodopa. “Off” periods occur when dopamine levels are low between carbidopa-levodopa doses, resulting in a return of motor symptoms like slowness, tremor, and stiffness. For faster action, the levodopa powder bypasses liver metabolism as it moves from the lungs to the bloodstream. Time will be left for a Q and A session.
Join Zoom Meeting
Meeting ID: 880 6511 3950
Special Event: Saturday Nov 7, 2020 at 9am Parkinson’s Foundation MOVING DAY Walk – our local group will meet for a socially distanced St. Augustine Beach Walk to celebrate the importance of movement in managing Parkinson’s.
The walk will start and end at STARS Rehab; Island location (Dondanville Rd and A1A). We will have two walk distance options. A shorter walk that turns around at the beach access point on Dondanville Road, and a longer walk that will take people onto the beach and back.
Information: The walk will start and end at STARS Rehab; Island location (Dondanville Rd and A1A). We will have two walk distance options. A shorter walk that turns around at the beach access point on Dondanville Road, and a longer walk that will take people onto the beach and back. Moving Day Jacksonville and Fundraising: Many of you are familiar with the Parkinson’s Foundation Moving Day Event. The Parkinson's Foundation has raised over $27 million and this money is put towards research, genetic testing to find a cure, and to support community based programs like the one we just launched at STARS rehab – The Park Avenue Program. Due to Covid-19, the foundation needs our fundraising help more than ever, so rally your friends and family to make a donation today and register with the STARS rehab team at: www.MovingDayJacksonvill.org
The STARS team will also be doing a 50/50 raffle to raise money – so PLEASE stop in and get some tickets to sell to your friends and family. Ticket sales will run from Oct 19 through Nov 5th. Winning ticket to be drawn on Friday Nov 6th. Our fundraising goal is $2000!
Please note that Moving Day Jacksonville is being hosted virtually this year with online programing starting at 10am after the completion of our in person walk.
Future events coming down the pipeline:
Support Group Holiday Social: Friday December 18th, 2020; 330pm-430pm at your home via zoom - Secret Santa gift exchange!
Information: Willing participants will spend $10 on a fun gift. Before wrapping your gift, write down 1 or 2 fun and interesting facts about yourself that others might not know. Don’t include your name!!! Wrap the gift up (including your fun facts) and drop it off to STARS Rehab Island location anytime on or before Dec 11th. Swing back to STARS during the week of Dec 14th to pick up your gift to unwrap during the zoom meeting. During the meeting you can unwrap your gift and read the fun facts about your anonymous gift giver and we can all try to guess who it is! No worries if you are not in town or can’t get purchase a gift – you can still join in the fun to help guess the gift givers and to get to know each other a little better!
Special Event: Friday January 8th AND Friday January 22, 2020; 330pm-5:00pm: Nutritional Classes with Keri Bomarito, licensed dietician and nutritionist from Seaside Nutrition.
Information: Turn over a new health leaf in 2021 and learn all about the Mediterranean diet over a 2 part educational series. This series is supported by our community grant and is therefore free to participate! This event will host 8 socially distanced live participants (masks required) at our STARS island location and the rest can join via a live stream through zoom. More details and sign up to follow.
*Links to previously recorded meetings*:
- THE GENETICS OF PARKINSONS DISEASE: PROGRESS AND IMPLICATIONS with Dr Alaine Keebaugh, PhD: https://youtu.be/PkRa_Hkm6IE
- EXERCISE 4 BRAIN CHANGE: Dr Melanie Lomaglio, PT, DPT: https://youtu.be/lBZdjhcMTos